- •PROMIS offers assessment options for multiple aspects of pain.
- •The authors qualitatively evaluated the PROMIS pain framework in pediatric pain patients.
- •The authors describe qualitative steps for crafting pain behavior and quality item candidates.
- •PROMIS domains capture reportable pain outcomes that matter to children with pain.
- •Pain coping warrants further study for item bank development.
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The Patient-Reported Outcomes Measurement Information System (PROMIS) is an NIH Roadmap initiative to develop a computerized system measuring patient-reported outcomes in respondents with a wide range of chronic diseases and demographic characteristics. PROMIS II was funded by cooperative agreements with a Statistical Center (Northwestern University; principal investigator [PI], David Cella, PhD, 1U54AR057951), a Technology Center (Northwestern University; PI, Richard C. Gershon, PhD, 1U54AR057943), a Network Center (American Institutes for Research; PI, Susan (San) D. Keller, PhD, 1U54AR057926), and 13 Primary Research Sites, which may include more than 1 institution (State University of New York, Stony Brook; PIs, Joan E. Broderick, PhD and Arthur A. Stone, PhD, 1U01AR057948. University of Washington, Seattle; PIs: Heidi M. Crane, MD, MPH, Paul K. Crane, MD, MPH, and Donald L. Patrick, PhD, 1U01AR057954. University of Washington, Seattle; PIs, Dagmar Amtmann, PhD and Karon Cook, PhD, 1U01AR052171. University of North Carolina, Chapel Hill; PI, Darren A. DeWalt, MD, MPH, 2U01AR052181. Children's Hospital of Philadelphia; PI, Christopher B. Forrest, MD, PhD, 1U01AR057956. Stanford University; PI, James F. Fries, MD, 2U01AR052158. Boston University; PIs, Stephen M. Haley, PhD and David Scott Tulsky, PhD (University of Michigan, Ann Arbor), 1U01AR057929. University of California, Los Angeles; PIs, Dinesh Khanna, MD and Brennan Spiegel, MD, MSHS, 1U01AR057936. University of Pittsburgh; PI, Paul A. Pilkonis, PhD, 2U01AR052155. Georgetown University; PIs, Carol. M. Moinpour, PhD (Fred Hutchinson Cancer Research Center, Seattle) and Arnold L. Potosky, PhD, U01AR057971. Children's Hospital Medical Center, Cincinnati; PI, Esi M. Morgan DeWitt, MD, MSCE, 17 1U01AR057940. University of Maryland, Baltimore; PI, Lisa M. Shulman, MD, 1U01AR057967. Duke University; PI, Kevin P. Weinfurt, PhD, 2U01AR052186). NIH Science Officers on this project have included Deborah Ader, PhD; Vanessa Ameen, MD; Susan Czajkowski, PhD; Basil Eldadah, MD, PhD; Lawrence Fine, MD, DrPH; Lawrence Fox, MD, PhD; Lynne Haverkos, MD, MPH; Thomas Hilton, PhD; Laura Lee Johnson, PhD; Michael Kozak, PhD; Peter Lyster, PhD; Donald Mattison, MD; Claudia Moy, PhD; Louis Quatrano, PhD; Bryce Reeve, PhD; William Riley, PhD; Ashley Wilder Smith, PhD, MPH; Susana Serrate-Sztein, MD; Ellen Werner, PhD; and James Witter, MD, PhD.
This manuscript was reviewed by PROMIS reviewers before submission for external peer review.
Supplementary data accompanying this article are available online at www.jpain.org and www.sciencedirect.com.