- •Adults with chronic pain benefited from Facebook support groups.
- •The benefits of participating in a Facebook group persisted at 1-month follow-up.
- •Over 80% of participants were satisfied, with little evidence of adverse effects.
- •Professional-led and standard Facebook peer support groups led to similar outcomes.
- •This RCT supports the use of Facebook groups as an accessible tool for chronic pain.
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- Self-efficacy: Toward a unifying theory of behavioral change.Psychol Rev. 1997; 84: 191-215https://doi.org/10.1037/0033-295X.84.2.191
- Can pain be managed through the Internet? A systematic review of randomized controlled trials.Pain. 2011; 152: 1740-1750https://doi.org/10.1016/j.pain.2011.02.012
- Post your journey: Instagram as a support community for people with fibromyalgia.Qual Health Res. 2019; 29: 237-247https://doi.org/10.1177/1049732318789102
- The role of peer support in diabetes care and self-management.Patient. 2009; 2: 5-17https://doi.org/10.2165/01312067-200902010-00002
- Empathic and nonempathic interaction in chronic pain couples.Clin J Pain. 2008; 24: 678-684https://doi.org/10.1097/AJP.0b013e31816753d8
- The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008.J Clin Epidemiol. 2010; 63: 1179-1194https://doi.org/10.1016/j.jclinepi.2010.04.011
- Using social media for health: National data from HINTS 2019.J Health Commun. 2021; 26: 184-193https://doi.org/10.1080/10810730.2021.1903627
- Exploring self-efficacy as a predictor of disease management.Health Educ Behav. 1999; 26: 72-89https://doi.org/10.1177/109019819902600107
- The Brief Pain Inventory.Pain Research Group, Houston TX1991
- Social support as a moderator of life stress.Psychosom Med. 1976; 38: 300-314https://doi.org/10.1097/00006842-197609000-00003
- Statistical Power Analysis for the Behavioral Science.Second Edition. Lawrence Erlbaum Associates, Hove London1988
- Stress, social support, and the buffering hypothesis.Psychol Bull. 1985; 98: 310-357https://doi.org/10.1037/0033-2909.98.2.310
- My fibro family!” A qualitative analysis of Facebook fibromyalgia support groups’ discussion content.Can J Pain epub ahead of print. 2022; https://doi.org/10.1080/24740527.2022.2078183
- Interpreting the clinical importance of treatment outcomes in chronic pain clinical trials: IMMPACT recommendations.J Pain. 2008; 9: 105-121https://doi.org/10.1016/j.jpain.2007.09.005
- Validating pain communication: Current state of the science.Pain. 2015; 156: 215-219https://doi.org/10.1097/01.j.pain.0000460301.18207.c2
- Peer-based behavioural strategies to improve chronic disease self-management and clinical outcomes: Evidence, logistics, evaluation considerations and needs for future research.Fam Pract. 2010; 27: i17-i22https://doi.org/10.1093/fampra/cmp027
- Pain processing in the human nervous system: A selective review of nociceptive and biobehavioral pathways.Prim Care - Clin Off Pract. 2012; 39: 561-571https://doi.org/10.1016/j.pop.2012.06.013
- Social media and chronic pain: What do patients discuss?.J Pers Med. 2022; 12: 797https://doi.org/10.3390/jpm12050797
- The Women's Recovery Group Study: A Stage I trial of women-focused group therapy for substance use disorders versus mixed-gender group drug counseling.Drug Alcohol Depend. 2007; 90: 39-47https://doi.org/10.1016/j.drugalcdep.2007.02.009
- Why are health care interventions delivered over the internet? A systematic review of the published literature.J Med Internet Res. 2006; 8: e10https://doi.org/10.2196/jmir.8.2.e10
- Patients' perceived barriers to active self-management of chronic conditions.Patient Educ Couns. 2005; 57: 300-307https://doi.org/10.1016/j.pec.2004.08.004
- A perspective-taking manipulation leads to greater empathy and less pain during the cold pressor task.J Pain. 2015; 16: 1176-1185https://doi.org/10.1016/j.jpain.2015.08.006
- Statistical Analysis with Missing Data.Wiley, New York2002
- Can a Back Pain E-mail Discussion Group improve health status and lower health care costs?: A randomized study.Arch Intern Med. 2002; 162: 792-796https://doi.org/10.1001/archinte.162.7.792
- The internet-based arthritis self-management program: A one-year randomized trial for patients with arthritis or fibromyalgia.Arthritis Rheum. 2008; 59: 1009-1017https://doi.org/10.1002/art.23817
- Pain and emotion: A biopsychosocial review of recent research.J Clin Psychol. 2011; 67: 942-968https://doi.org/10.1002/jclp.20816
- Emotional awareness and expression therapy for chronic pain: Rationale, principles and techniques, evidence, and critical review.Curr Rheumatol Rep. 2019; 21: 30https://doi.org/10.1007/s11926-019-0829-6
- Emotional disclosure interventions for chronic pain: From the laboratory to the clinic.Transl Behav Med. 2012; 2: 73-81https://doi.org/10.1007/s13142-011-0085-4
- The efficacy of Web-based cognitive behavioral interventions for chronic pain: A systematic review and meta-analysis.J Pain. 2010; 11: 917-929https://doi.org/10.1016/j.jpain.2010.06.005
- Health outcomes and related effects of using social media in chronic disease management: A literature review and analysis of affordances.J Biomed Inform. 2013; 46: 957-969https://doi.org/10.1016/j.jbi.2013.04.010
- Characteristics and perception of social support by patients with fibromyalgia in Facebook.Br J Pain. 2018; 1: 4-8https://doi.org/10.5935/2595-0118.20180003
- Fifteen years of explaining pain: The past, present, and future.J Pain. 2015; 16: 807-813https://doi.org/10.1016/j.jpain.2015.05.005
- Silent participants: Getting to know lurkers better.in: Lueg C Fisher D From Usenet to CoWebs: Computer Supported Cooperative Work. Springer, London2003: 110-132
- Challenges in accessing multidisciplinary pain treatment facilities in Canada.Can J Anaesth. 2007; 54: 977-984https://doi.org/10.1007/BF03016631
- How do I help my partner in pain? Partners’ helping behaviors are linked to lower pain and greater perceived validation during an experimental pain task.Ann Behav Med. 2020; 54: 280-290https://doi.org/10.1093/abm/kaz047
- Item banks for measuring emotional distress from the Patient-Reported Outcomes Measurement Information System (PROMIS): Depression, anxiety, and anger.Assessment. 2011; 18: 263-283https://doi.org/10.1177/1073191111411667
- A randomized controlled evaluation of an online chronic pain self management program.Pain. 2012; 153: 319-330https://doi.org/10.1016/j.pain.2011.10.025
- Clinical validity of PROMIS depression, anxiety, and anger across diverse clinical samples.J Clin Epidemiol. 2016; 73: 119-127https://doi.org/10.1016/j.jclinepi.2015.08.036
- Social interactions in an online self-management program for rheumatoid arthritis.Chronic Illn. 2008; 4: 239-246https://doi.org/10.1177/1742395308097862
- Validation of the Brief Pain Inventory for chronic nonmalignant pain.J Pain. 2004; 5: 133-137https://doi.org/10.1016/j.jpain.2003.12.005
- Social support as coping assistance.J Consult Clin Psychol. 1986; 54: 416-423https://doi.org/10.1037/0022-006X.54.4.416
- Feasibility of a social media/online community support group intervention among chronic pain patients on opioid therapy.J Addict Dis. 2018; 37: 96-101https://doi.org/10.1080/10550887.2018.1557992
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Conflicts of interest: We have no known conflicts of interest to disclose.
Trial registration: ClinicalTrials.gov (NCT04010019).